lauraw2693 Posted February 2, 2011 Report Share Posted February 2, 2011 I saw my psychiatrist a month ago and we talked about a dissociation specialist doing a full assessment with me because my psych admits he doesn't know much about dissociative disorders, only problem was funding because its not in my local area - he said he'd find out and my cpn would let me know. Not heard anything yet. She suggested having a meeting with cpn, psych, support worker, counsellor & therapist and if they could conclude from that that theres something missing from my care that this assessment might provide they might be able to justify the funding - not heard anything more about this meeting either.. The assessment costs £1200 which is why I haven't gone private yet. Thing is I'm starting to lose time more and getting more and more freaked out with it, I'm doing things when I'm out of it and have hurt myself when I am before and have no recollection of doing it. It's getting worse basically and I don't want to wait months more, already been trying to get people to take me seriously for 3 years! It feels almost like I have to be at the point I do myself some real damage in that state before they'll take it seriously. My counsellor this morning suggested setting a timeframe - if it doesn't come off within however long consider asking my parents for financial help and get it done privately.. although I'm avoiding this because I'd feel obligated to tell them how it went and I don't want to.. Not sure what to do? Link to comment Share on other sites More sharing options...
lucyloo Posted February 2, 2011 Report Share Posted February 2, 2011 I fought for funding for my son, around 1996, I got it around 2002, but was too late, he was too old to live in a theraputic community. He ended up in a specialist kids home at 120 k per annum. Thats the time frame I experienced. L x Link to comment Share on other sites More sharing options...
Shadow girl Posted February 2, 2011 Report Share Posted February 2, 2011 I would phone your psych evry two weeks and ask if there is any news yet until there is some news. If he/she said they would look into it then it's ok to push to discover what they found out. Link to comment Share on other sites More sharing options...
lauraw2693 Posted February 2, 2011 Author Report Share Posted February 2, 2011 Geez that's a long time Lucy, I'm sorry they took so long getting their act together in your son's case. I guess that's what I should be doing, being persistent, I'm just no good at asking for anything especially asking more than once and they know that so they're probably hoping I'll drop it so they don't actually have to bother <_< Link to comment Share on other sites More sharing options...
doormouse Posted February 2, 2011 Report Share Posted February 2, 2011 Coming at this from both sides, I know only too well that you have to be persistant - however much the thought of another assessment might be unappealing (I always found them exhausting, having to go through stuff again and again) sounds like not getting the help you need could be even worse. When are you next seeing your psych? If its not for a while I'd definately reccomend calling them, first to tell them how much you are struggling, and also to find out whats happening - it would certainly be worth "reminding" them of the suggestion and that its the dissociation is whats bothering you. It's crap, but the way the MH system seems to work is that we have to fight hardest to be heard when we are least capable of doing it.... Hope things start getting better. Mouse Link to comment Share on other sites More sharing options...
toaster Posted February 3, 2011 Report Share Posted February 3, 2011 hey there im sorry u are left waitin, i know its frustrating. im kinda nhs lover now lol because they helped me so much and the therapy i received probably saved my life, and not just in the literal sense. the way i look at it that regardless of how long it takes, we DO have the nhs and they are bogged down - lack of workers, too many patients - elsewhere in the world we wouldnt have a choice BUT to pay, pay for everything, meds, any therapy, pdoc, assessments etc...but i do understand your frustration. ive had similar, waiting on phone calls, letters, referrals etc and its horrible not knowing, leaving your fate in someone elses hands. you do have bug them, be persistent etc - which can be difficult if ur anxious with communication or if u are losing time ((((((((shadowoftheday)))))))) i hope they dont keep you too long and best of luck toasties xx Link to comment Share on other sites More sharing options...
successful_workthru Posted February 3, 2011 Report Share Posted February 3, 2011 Do you feel a danger to yourself? I ask because you said this Thing is I'm starting to lose time more and getting more and more freaked out with it, I'm doing things when I'm out of it and have hurt myself when I am before and have no recollection of doing it. There's waiting for treatment, which we all have to do to a certain extent, but if you are hurting yourself in the meantime, I feel that you need to stress this to them, as its a safety issue. Not trying to scare you, but just pointing out that if you safety is at risk through hurting yourself and not remebering, due to dissociation, then something needs doing. Please try to keep on at them and stress that you have hurt yourself, and if you are concerned, stress that too. May you get the treatment you deserve, and yes, like toaster says, we dont have to pay for treatment like other countries, because if we did, many of us would never get treated at all. Link to comment Share on other sites More sharing options...
lauraw2693 Posted February 3, 2011 Author Report Share Posted February 3, 2011 I don't actually have another appointment booked with my psych at the moment, usually do that through my cpn but not seen her in several weeks. Thanks, yeah it is good not having to pay generally I can see that and that they're short staffed/lack of resources I suppose yes I do worry about being a danger to myself, well more so to other people, I would never hurt anyone else normally but I don't know what I'm doing when I'm out of it. They are aware this is the case because A&E have phoned my cpn before when I hurt myself in this state, not sure they believed I didn't remember doing it <_< Link to comment Share on other sites More sharing options...
Poiple Posted February 3, 2011 Report Share Posted February 3, 2011 I am also having a lot of problems with the NHS and I can sympathize with your situation, it's very frustrating! Could you get your GP on side and have him help you? Or write to PALS? I'd also like to point out that the NHS isn't free, we pay considerably for it through our taxes. Link to comment Share on other sites More sharing options...
roxy222 Posted February 3, 2011 Report Share Posted February 3, 2011 nhs are a fricking nightmare mostly are you sure the only private option is £1200, i though pottergate were a few hundred, maybe other places might have varrying prices, and maybe they might do concessions and payment plans? best of luckx Link to comment Share on other sites More sharing options...
Christine001 Posted February 3, 2011 Report Share Posted February 3, 2011 my experience if you have the energy to fight shout loud and loud, its the only way. me I haven't. they are crap. Link to comment Share on other sites More sharing options...
lauraw2693 Posted February 3, 2011 Author Report Share Posted February 3, 2011 I've written to PALs they said talk to your GP or psych and I've now done both - my GP said I'd have no problem getting the funding if my psych agrees its necessary, he said it was but wasn't sure I'd get the funding - what?! Roxy have you seen someone at Pottergate? The full assessment & meeting with your care team & finding an appropriate therapist costs £1200 for the day, that's what the guy I've been emailing told me anyway.. I don't know where else there is in the UK that specialises in dissociative disorders? I haven't asked about concessions/payment plans though, I will. Christine I'm running out of energy to fight too to be honest :unsure: Link to comment Share on other sites More sharing options...
Christine001 Posted February 3, 2011 Report Share Posted February 3, 2011 Ok suggest go back to pdoc asking directly what you want what he has said to you and ask when and who makes a decision about funding and cc chief executive of the mental health trust, as its their budget not GPs. Ask for a response within 2 weeks. If pdoc has said it is a need then he/she might need the authority for them to release the money, or from another administartor and needs a push to sort this out. ( they hate on the whole dealing with funding issues. pdoc would probably need to write an assessment to CE giving the reasons why your need cannot be met within the trust. and might have to show what else they have done so far. its all crappy red tape and smoke and mirrors, basically who pays for it. but writing to chief executive means pdoc will be expected to respond, though expect the CE to not want to go out of their trust if they feel that they have any other choice. have you a local advocacy service, like MIND to help you with this, as basically Pals are part of the trust you are trying to get help from so in my view not indipendant, more a can we reach a compromise sort of organisation. PCTS fund the mental health trust so if no look with that them write to PCT, eg they have assessed you as needing it but seem to be stalling on paying and what action you have taken so far. Gps currently have no influence over these fudning decisions. hope this helps. Link to comment Share on other sites More sharing options...
roxy222 Posted February 3, 2011 Report Share Posted February 3, 2011 I've written to PALs they said talk to your GP or psych and I've now done both - my GP said I'd have no problem getting the funding if my psych agrees its necessary, he said it was but wasn't sure I'd get the funding - what?! Roxy have you seen someone at Pottergate? The full assessment & meeting with your care team & finding an appropriate therapist costs £1200 for the day, that's what the guy I've been emailing told me anyway.. I don't know where else there is in the UK that specialises in dissociative disorders? I haven't asked about concessions/payment plans though, I will. Christine I'm running out of energy to fight too to be honest no not personally, a friend told me about costs once and i thought it was less. is there nowhere else? what about just seeing a private pdoc? my old t was also a qualified pdoc, expensive but not scarily so, he said i likely had ddnos, and said we cd spend a sessions doing assessments for a dx if i wanted, but i wasnt personally fussed with a formal dx, and i cd only afford so many sessions at that point and i needed to spend them on the pstd and fbs etc. he was an expert in dissociation and child truama, world expert, and only temp in my area, which is rare to find, but maybe you cd look about. i found him by contacting the european society for truama a dissociation, and i heard his name from a couple of other similar sources, the website TAG i think or a link off it, maybe you cd look about a bit gd luckx Link to comment Share on other sites More sharing options...
lauraw2693 Posted February 3, 2011 Author Report Share Posted February 3, 2011 Thanks Christine that does help, I need to get myself motivated enough to fight for this because I obviously need something more than the support I currently have.. I hadn't thought of MIND for advice/help with it, they've been good in the past so might go down that route, PALs have been less than helpful recently.. I'll write down what you've said though and ask my support worker about it tomorrow, she works at the same place so should be able to tell me if it seems like a good plan of action (I'm sure it is I just have no idea with this stuff). xx Roxy, I think actually going there for therapy is a lot less maybe that's what your friend meant? Although he did say a full assessment which includes meeting and advising my care team here so maybe there's a shorter assessment they do as well, not sure I might go back and ask him.. As for other places I've been looking for ages but all I can find is a place in London which looks more like research than anything else. I'm in Devon so I looked at Bristol Priory as they list pdoc expertise but no one mentioned dissociation/depersonalisation. I guess seeing a private pdoc is an option, I did look into that, like I said the Priory they were about £300 for an hour/hour and a half assessment if I remember correctly but I suppose that's one of the main hospitals so somewhere smaller may well cost less. I will have a look at that site too, thanks for your help as well xx Link to comment Share on other sites More sharing options...
Christine001 Posted February 3, 2011 Report Share Posted February 3, 2011 hi sorry if that sounded complicated had to run off to make tea, but if you need someone to help you with writing to them then I do know the system a bit so pm me if you like. xxx Link to comment Share on other sites More sharing options...
lauraw2693 Posted February 3, 2011 Author Report Share Posted February 3, 2011 That's okay, may take you up on that thanks lovely xxx Link to comment Share on other sites More sharing options...
Recommended Posts
Archived
This topic is now archived and is closed to further replies.