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Mental Health Advocacy - May Trigger


catsmother21

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http://www.a4mhd.org.uk/ - I went down to their open day and they were really helpful.

http://www.leedspft.nhs.uk/our_services/PDC - these guys might be able at the very least to offer advice.

and if all else fails, get in touch with http://www.pals.nhs.uk/ (patient advise and liaison service)

I'm also led to believe that there are specialist C.A.B. advisors for Mental Health - I'll try and find out who the guy is in our area and get back to you...

Keep on keeping on you, hope this gets sorted soon.

KX

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Hi K

It is Advocacy for Mental Health and Dementia that have agreed to take on my case, just waiting to hear from them with a date for a home visit so they can get some more background information about what has been going on before we go to my next pdoc appt in Dec.

Thanks sweets xx

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Hi K

It is Advocacy for Mental Health and Dementia that have agreed to take on my case, just waiting to hear from them with a date for a home visit so they can get some more background information about what has been going on before we go to my next pdoc appt in Dec.

Thanks sweets xx

Great news cats! xx

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I can't stand this depression any longer!! :(

I have been sat here wondering what to do about it and I think I've decided to up the citalopram back to 40mg because I just cannot stand having no motivation and thinking about sui and a way out all of the time.

My CPN is on leave at the moment and so I am going to speak to the duty CPN and see what they say. I know it will knock my sleep out and not sleeping causes me to feel bad but I am such a turmoil about all of this - I just don't know what to do!!

I hate my pdoc with a vengeance at the moment - it's so unfair that she is doing this to me.

Will speak to duty CPN, if they are there, and then decide what to do. :(

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Got through to a lovely duty worker who really listened to me and she is going to talk to my pdoc (she isn't there today but back tomorrow) and then she is going to call me when she has spoken to her. I have said that I am quite prepared to go back up to 40mg if she will prescribe something that will counteract the no sleep side effect. I also told her that I am aiming at having an advocate with me at my next pdoc appt because I feel so desperately not listened to and she actually said that she thinks that is a very good idea! Was very surprised at that - thought they would all close ranks but that made me feel better.

Got very upset and worked up and was surprised to managed to make out what I was saying but she did and so I just have to wait for her to call me back.

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I'm really glad the duty worker was so good, has she phoned back yet? if not i supose it might take a little while to find a time when your pdoc is available. idk if this is what happened to you but i often find speaking to someone who is really kind and understanding can make me just as emotional as talking to someone who doesnt understand.

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Yes I know what you mean Emma - it was such a relief that she was being so nice and actually listening to me that I burst into tears when I put the phone down. I am hoping that I will hear something back from her today or tomorrow. xx

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Just read this post, and I really hope things improve for you. You shouldn't have to be fighting for proper treatment, and I hope your pdoc is a bit more helpful with someone there with you. It may make her sit up and think when she realises you have had to get outside help in just for her to listen to you properly.

Good luck xxx

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Not heard anything back yet from the CPN or my pdoc - what the bloody hell are they doing?!!

I know I'm not the only one that they have to deal with on an emergency basis but bloody hell - I could be dead by now :mad0233:

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Thanks Dory and vivien for your hugs and thoughts - no phone call :(

Depression going through the floor and anxiety going through the roof! Feel shocking.

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thats really bad hun sorry theyr being so, well i rude i guess i think its very rude. keep posting if it helps hun were all here to listen and try and help (((((big hugs))))) xx

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Well had no sleep - just couldn't shut my head up, even the PRN didn't do it's job. :(

I have decided that if I haven't had a phone call from them today by 3pm then I am going to ring them and see what is going on and I am going to point out in an assertive way that it isn't helpful when I am left hanging with no idea what is going on or what their decision is.

If the duty CPN hasn't been able to talk to my pdoc then all she had to do yesterday was phone and just give me a status update and that would have saved me a whole lot of anxiety and sui thoughts yesterday. When I was working, I would never have just not phoned a client, I would have always kept them in the loop with courtesy calls so they knew what was going on and that they were not being ignored.

My head is banging from lack of sleep and I feel and look like shit. I wouldn't mind but in the nearly 6 years that I have been with my pdoc I have never asked for an emergency appt before, have always complied with her and I really don't know what her problem is now when I DESPERATELY need help?!

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It is annoying - the bit that pisses me off the most is that if we were "normal" and called up to rant or express upset, in some senses I feel that they'd be a lot more forgiving, but it's almost like they have an excuse to palm it off or sideline it - "oh, it's your condition, isn't it..." when really the answer is "no, you're treating me with a lack of respect and courtesy and I'm extremely pissed off about it" - I've had similar treatment from PFT services this week...doubly annoying when you get to see their 24 page documents saying "we promise not to kick you in the face..." - a document that then gets put on a shelf and never enforced by anyone, whilst they merrily continue kicking you in the face...at least banks have the FSA and ombudsman.

Hang in there you...anyone in your position would be annoyed and I think you have every right, but you're also right that assertiveness is the way forward, which is never easy in the face of total ignorance! :)

KX

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Hi there,

I hope you've managed over the weekend since they appear to've left you to it. I do hope you get some support this week. When mine didn't get back to me and I was desparate I went to my GP instead who did give me something which did help. When pdoc finally got back to me he said no to meds and gave me a self help leaflet and a cd. I was furious. Do consider your GP if you get no joy in the morning.

Hugs to you.

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Hi Shadow

I've got an appt with my CPN on Tues - so not expecting to hear anymore about this until she gets here on Tues.

Hubby and I are going to make an appt with my GP and both go and talk to her - she has always been really good and understanding with me in the past and so I hope she will be as helpful this time.

I have got through the weekend OK but suffering with really bad tension pain from my neck down to the middle of my back and my shoulders as well. I think it's because I told myself that I would try to use the weekend to calm down and try not to think about it but it's Monday tomorrow and so the weekend is nearly over and I will have to start tackling it again.

Hugs back to you sweets xx

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Catsmother, do you think there is a possibility that you have bipolar disorder and that is why the anti-depressant isn't working for you. Have you ever tried a mood stablizer or an anti-psychotic?

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Hi Icu

No I am definitely not bi-polar - I was put on a mood stabiliser a few years ago to see if I was bipolar and it sent me sky high for about a week and a half and then I crashed back down to earth and never came up again or levelled out for any period of time. I remember that feeling of being so high and it was wonderful but I wasn't sleeping either and so when I did crash, I was completely exhausted. I definitely have all the traits of BPD and a recurrent depressive disorder as well as paranoia and transient psychotic symptoms which I do already take an anti-psychotic for.

Thanks for your thoughts thought :) xx

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FURIOUS!! I have just phoned the advocacy service who are supposed to be dealing with my case and it would appear that they don't know anything about it. I spoke to a woman at the time and I spoke to a gentleman today and he was very vague and he said could I give him some time and he will call me back - I want to go to bed and now I have to wait for this effing phone call!

Why can't people do their jobs properly? My appt is with my pdoc that they are supposed to be supporting me at is on 7 Dec which is no time at all and if they are already booked up then they are not going to be able to support me at the appt!!!!

If they don't attend with me then I know nothing will happen or change for the better because the pdoc will continue to dig her heels in and then I will have to wait for another 3 months for an appt.

Just want to give up - why can't people do their job instead of leaving it to thepeople who are already ill to ensure that they are doing their job properly and which just makes me feel worse because I then don't trust them to do anything else.

They have just phoned me back and he found the referral but nothing had been done about it - just filed FFS. If I hadn't have called it would have still been sat there on 7 Dec and no-one would have turned up at the meeting.

When I was working, if I'd worked like this and just filed clients files and did nothing about them, my boss would have sacked me!!

Someone is going to call me tomorrow morning to discuss what we do next.

God why does everything have to be so difficult - why can't things just flow smoothly for once - ARRGGGHHHHHHHH

Lots of med to knock me out and bed for me.

:mad0233: :mad0233: :mad0233: :mad0233:

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((((((catsmother))))))

I'm really sorry you're having to go through this. If the worst comes to the worst can you ask your hubby to come with you so he can vouch for your lack of sleep? Also for moral support...

I hope you feel calmer later

xxx

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